Tuesday, March 17, 2015

Update

So this is where we are at.  Travis​ is in a ton of pain. He is on Fentora,  Fentanyl and oxycodone and still has a lot of pain. In order to get Fentora you have to be opioid resistant, have cancer and chronic pain.  It's something the pharmacy only orders for him, they don't just keep it on hand. It blows me away to see how much pain he is still in. He can't walk real well.  He doesn't leave the house unless he really has to, and it's in a wheelchair when he does.

He has a sinus tract in his colon that is allowing stool to flow through, which is what is so painful.  It's causing inflammation and is pressing on his sciatic nerve.

His surgeon won't operate on this part of his colon because it is radiated tissue and the risk is that it won't heal at all and then he will bleed out.  He thinks Trav should get a colostomy. His surgeon was present when Trav got a colonoscopy with his GI doctor, which was cool...but we felt also influenced his opinion.  His GI Dr said he wouldn't hesitate getting a colostomy to improve quality of life.

We have an appointment with a neurologist this week to look at some spasms and hopefully help with pain options.

We are also meeting with another surgeon to get a 2nd opinion this week.  We've been waiting patiently for this appointment, she is at the U and works with colo-rectal cancer!

A colostomy is not the worse thing, but at 33 it's a long term life altering decision that we don't want to rush into.  We are praying for some clarity this week so we can move forward.

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